27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
I know that Jane Dodds wants to come in on this, but just quickly, Sarah, you had a question.
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Ann, obviously you're an expert in patients with mental health challenges. They won't want everybody to know about something that's happened to them in the past. How do you, in your research, ensure that it's on a need-to-know basis and no more?
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Very good. At the most basic level, if I'm away from home and I lose my glasses or I break them, I don't want to be searching around for a little card that I get given at the opticians; I want to be able to go to the nearest shop and say, 'Give me some…
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
So, Ann, what role does your organisation, or indeed, coming back to our witnesses in the room, what roles are you playing in helping to improve transparency for the individual patient, but also streamline access to important data to enable us to treat people…
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Thank you. That's very useful.
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
For the benefit of the general public, could you just explain what 'SAIL' is, because this word has been used a couple of times?
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Okay. Robert.
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Okay. But it is a complex issue, isn't it, because a GP might want to write on the notes for the benefit of their colleagues, 'This patient can be aggressive', or something like that, which you wouldn't necessarily want the patient to see.
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
I just wanted to pursue, really, the state of data management in NHS Wales, because obviously, somebody with a chronic or acute illness doesn't want to be telling their story 65 times, but equally, there will be different organisations involved, so the GP…
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Okay. Ann.
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Thank you. The NHS has long had quite a complex process of permissions before people can do research on randomised control trials and that sort of thing and it has felt to researchers quite bureaucratic and really extensive to-ing and fro-ing, but how has…
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Chris Carrigan, I think, wants to come in.
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Sarah, could you—? Ann John wants to come in on this point.
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
Thank you for that excellent summary. We'll just move over to Sarah Murphy, who's got some questions for you.
27 Mawrth 2023 , Equality and Social Justice Committee
Cyfiawnder data: y defnydd o ddata personol yn y GIG yng Nghymru: sesiwn dystiolaeth 1
So, for the first of our sessions on data justice and the use of personal data by the Welsh NHS, I'm very pleased to welcome Chris Carrigan, who is an expert data advisor for Use MY data, as well as Dr Robert French, and who are both here in the Senedd, and…
27 Mawrth 2023 , Equality and Social Justice Committee
Cyflwyniad, ymddiheuriadau a dirprwyon.
Thank you very much. Just by way of illustration, this is a hybrid meeting, so some Members are in the room and other Members are joining us online. It's a bilingual meeting, so simultaneous translation is available from Welsh to English, and all the public…
27 Mawrth 2023 , Equality and Social Justice Committee
Cyflwyniad, ymddiheuriadau a dirprwyon.
Sorry, I didn't—. I think you've frozen. I heard it's something to do with your husband. I think you're back in the room, Sioned. If you could just complete the sentence about your declaration of interest.
27 Mawrth 2023 , Equality and Social Justice Committee
Cyflwyniad, ymddiheuriadau a dirprwyon.
Good morning. Welcome to the Equality and Social Justice Committee, and today we're looking at data justice and the use of personal data in the Welsh NHS. We've got three sessions. First of all, I just want to do a bit of housekeeping. We've had apologies…
24 Mawrth 2023 , Committee for the Scrutiny of the First Minister
Sesiwn i graffu ar waith y Gweinidog—Y cytundeb cydweithio
Okay. We haven't got time to go on on this, but perhaps we can have a note, really, on—
24 Mawrth 2023 , Committee for the Scrutiny of the First Minister
Sesiwn i graffu ar waith y Gweinidog—Y cytundeb cydweithio
But this could unseat the ambition of the Minister, and yourselves, to change the food culture and ensure every child is being fed a nourishing meal. Professor Kevin Morgan says that the real danger is that the pressures, the capacity issues in local…
24 Mawrth 2023 , Committee for the Scrutiny of the First Minister
Sesiwn i graffu ar waith y Gweinidog—Y cytundeb cydweithio
Okay. To what extent are rising food prices—the ingredients for these meals—and the shortage of catering staff, the chefs that are needed to make the meals, posing a challenge to the viability and sustainability of this ambitious project?
24 Mawrth 2023 , Committee for the Scrutiny of the First Minister
Sesiwn i graffu ar waith y Gweinidog—Y cytundeb cydweithio
Okay. All right. It's a complex situation, but clearly it's an important economic consideration.
24 Mawrth 2023 , Committee for the Scrutiny of the First Minister
Sesiwn i graffu ar waith y Gweinidog—Y cytundeb cydweithio
In terms of making every contact count, the Welsh Government website says that you will need to register your child for free school meals, and this information will be provided to your child's school or local authority. Are we asking people about their…
24 Mawrth 2023 , Committee for the Scrutiny of the First Minister
Sesiwn i graffu ar waith y Gweinidog—Y cytundeb cydweithio
Thank you. The children's commissioner says that child hunger is the No. 1 issue, so clearly there's an urgency to rolling out universal provision in primary schools where possible. Are there any local authorities who will be unable to provide the meal to…
24 Mawrth 2023 , Committee for the Scrutiny of the First Minister
Sesiwn i graffu ar waith y Gweinidog—Y cytundeb cydweithio
Okay, because if you invest—
